May is Lyme disease awareness month. Back when I fought the battle of Lyme disease, no support existed. In fact, the United States CDC had very little on their website about it, and I had to use the Canadian CDC site to obtain most of my information about the destructive disease. Social media hadn’t been created yet, so I was on my own to fight for my life.
We’ve come a long way now with the entire month of May being Lyme disease awareness month. I’m grateful people are more informed about it—that it is as difficult to diagnose as cancer, just as tough to beat, and it forever changes you and your life. More and more people are being affected personally by it—being diagnosed themselves or knowing loved ones struggling with it. I’ve had hundreds of people reach out to me through the years telling me of their horrible stories about a disease that doesn’t get much recognition in the medical community.
Did you read about Kris Kristofferson and how he was misdiagnosed with Alzheimers when, in actuality, he had Lyme disease? Now that he is receiving the proper treatment, he’s getting better! I’ve been yelling from the roof tops for nearly 20 years that upwards of 45 percent of ALL autoimmune diseases are Lyme disease undiagnosed. These people are taking toxic drugs with multiple side effects, yet, they will never get better because they don’t have an autoimmune disorder…they have a bacterial infection called Lyme disease. Unfortunately, not much is being done to get serious about testing properly for it.
As much as awareness is important, it is only the first step. We are FAR from getting a handle on this epidemic disease. Read more about it, and you will learn that it is way more critical than AIDS or Zika, but our government continues to ignore it. We need to take awareness and turn that into action.
Right now, those who are fortunate enough to actually get an accurate diagnosis (the current test the US uses is flawed with extreme failure rates) have to pay for what will actually cure it. Insurance does not cover the definitive test, nor do they cover the things that work. Our out-dated protocols here in America do not work unless the disease is caught in the first two weeks. Unfortunately, most people don’t figure out they have it for years and years. This leaves countless people getting sicker ever day with little chance of ever getting their health and life back. I’m sadden beyond words and extremely angry.
Personally, we about went broke treating my case. I’m so thankful my husband was so supportive. At one point, we were weeks away from having to give up our house so I could get better. No one should have to go through this AND worry about fighting for their life. Another family I recently corresponded with did sell their home and are moving to another state in hopes of finally getting their seventeen-year-old daughter help. She’s bed ridden with the disease. It will cost them $100,000 that they don’t have. This is outrageous! My belief is that they are getting taken for a ride, but out of sheer desperation, they will try anything. Again, this is unacceptable.
So as a person who overcame, beat, and won over this vicious disease, I thank you for passing along articles and blogs about the severity and expanse of Lyme disease. Please don’t stop there. Write your congressman and demand that the tests be approved for coverage and that we change our existing protocols for Lyme disease to ones that will cure people without putting them in the poor house.
For those in those dark days of fighting for their lives, I’d encourage you to get a copy of my boooklet Defy Your Diagnosis. The principles here helped me get on the other side, and I hope it helps you win your battle as well.